By spreading awareness of the symptoms and fatal outcomes of genetic aortic disorders across Canada and globally, together we help prevent early death and to improve the quality of life for patients.
For the 15th year, in April 2018, a Memorial Pool Tournament fundraiser was organized for Jason ‘Ruffy’ Keith by his closest family and friends at Dooly’s in Moncton, NB.
Jason’s family continues to host this event year-after-year to keep Jason’s memories and friends close & more importantly to help increase the awareness of the terrible disorder – Jason passed away in 2003 from Marfan syndrome.
Yet again, the turnout of supporters was exceptional! There were approximately 30 pool players & the place was full of family &friends. The event raised over $ 2,000 in memory of beloved Jason Keith. These proceeds were kindly donated to GADA Canada, Thank you!
For the second year, on November 18, 2017, #SailsofLight at Canada Place , Vancouver, will be lit red recognizing awareness of genetic aortic disorders in Canada. GADA is thankful to the Port of Vancouver for helping to spread awareness of all genetic aortic disorders related to Marfan syndrome.
Canada Place Sails of Light are illuminated each evening from dusk to dawn, with seasonal vibrant colours, displays and animation. The Vancouver Fraser Port Authority offers local charities and non-profit events, the opportunity to build awareness for their cause or organization by illuminating the Sails of Light in colours themed to the specific cause.
In September 2017, GADA hosted a 'Genetic Aortic Disorders & Marfan Peer Support Network' meeting for members of the Greater Toronto Area (GTA). Thanks to the initiative taken by GADA members; Tami Friedman, Nicole Pleten and Katy Hornsby; 17 members from around the GTA, who are affected by a genetic aortic disorder, were happy to connect with each other for peer support.
The group expressed that the meeting was very beneficial and have planned to get together again for a fun & games meet up on December 2nd @ 11 a.m. at A Game Cafe, Toronto Click Here for event details
To stay connected with each other, a closed Facebook group has been set up called ‘Friends of GADA GTA’. If interested to join the GTA group or if you would like GADA to help start a support group in your area, please send us an email.
Congratulations to Dr. Dianna Milewicz, M.D., Ph.D., Chair of GADA's Professional Advisory Board and Scientific Chair of the Montalcino Aortic Consortium (MAC), on being honored with Belgium’s Princesse Liliane Professorship.