The CMA is proud to announce to our members and friends that we are in the process of changing our name to better serve our Canadian communities. As we announced in our 2013 Newslinks issue, and further unveiled at the 2013 Annual General Meeting, we are pleased to present our new face in September 2015. The new name will include a new website, better resources to serve our community including information resources packages on being diagnosed, school teacher and nurse packages, and fundraising packages.
With expanded research, and a broadened scope, the CMA will continue its mission to serve individuals affected by Marfan syndrome and heritable thoracic aortic disorders. As all these patients have one commonality, aortic aneurysms and dissections; in order to increase awareness and the importance of early diagnosis and family history, the CMA’s new name will reflect the group of disorders and the larger community that belongs to them. Remember, Marfan syndrome will not be underserved; rather the CMA will be positioned to better serve all our patient groups!
As fundraising becomes more difficult, we hope that the new CMA name, encompassing Marfan syndrome and other genetic aortic disorders enables us as an organization to secure more funding and have a broader reach to Canadians.
Therefore, our mission will remain the same: to save lives and improve the quality of life through our programs of awareness, education, support and research for patients affected by Marfan syndrome and other genetic aortic disorders.
We hope you, our members and friends are just as excited as we are. We anticipate the new change will bring on new strength, new ties, and new funding for the Association! The new CMA looks forward to serving you, our friends, members, patients, and community!