Testimonials and Stories

Claire (McHenry) Dion, sister of  Elizabeth McHenry (CMA Founder), endorses "the evolution of the Canadian Marfan Association (CMA) to GADA Canada; to include research, awareness and treatment for other genetic aortic disorders. This progress is encouraging and visionary. A heartfelt 'thank you' to all the members of the GADA team, as well as the many professionals and others who work tirelessly to continue the research, education and appropriate treatment for those affected by these disorders. The best of success in your new endeavours." Read more about our Founder


Handling It Like A Champ - by Jennifer Wallace
In the middle of the night, the doctor woke me with the news that Tyler had to be rushed to Sick Kids for cardiac surgery. I tried to get out of bed, but was too weak and in too much pain. I never got to hold him or even kiss him goodbye. I called Eric and told him he needed to get to Sick Kids to meet the doctors immediately. Neither of us knew what to expect. More


The Amateur EMT - By Brian Latimer
Alex started crying telling me his shoulder hurt; then his jaw hurt; then it was his back. He immediately broke into a sweat and we knew something was seriously wrong. In the back of my mind there was a story I’d read in the GADA Newsletter describing the symptoms of an aortic dissection and the intense, non-localized pain that resulted from it. We rushed Alex to Bowmanville Hospital where he was kept under observation until an Ambulance could arrive to take us to Sick Kids...More


Katy Hornsby & Family - Marfan syndrome & Other Mutation
“Knowing that GADA is working to improve care and support for people with Marfan syndrome, as well as those with genetic aortic disorders, brings me great hope for the future of my family's health”…More


Nicola Canta - Unknown Mutation
“Until the role of GADA in deciphering and highlighting the distinctions in aortic disorders, I felt as though I was living under an umbrella of fear”….More


Ulyana -MYH11 mutation
“GADA’s program to support the MAC international registry research is extremely crucial to keep medical professionals updated of the many new gene mutations that cause fatal aortic disorders.”…More


Nevaeh - TGFBR2 Mutation (LDS2)
"Sandra’s grand-daughter, Nevaeh was diagnosed with  TGFBR2 mutation (Loeys-Dietz syndrome), which in her case, is random with no familial link. Sandra is currently on the Board of Directors for GADA Canada and remains dedicated to fostering awareness and being a supportive advocate to several members of the LDS community in Canada”…More


Lisa & Lauren - ACTA2 Mutation
“We need to continue with research efforts to help us understand ACTA2 and other genetic aortic disorders better. They are complex and multi-systemic but most of all, they can be deadly. Please help to improve the odds by contributing to the efforts of GADA Canada to support research and promote knowledge of aortic health among our community”…..More
 


Noelle Beer - Marfan syndrome
“While we try to teach our children all about life, our children teach us what life is all about." - Unknown...More


Ian Coomes - Marfan syndrome
"Through CMA (now GADA) we all have the chance to do everything we want to do and more, both before and after a cure is found"...More